As a linguist, expressing myself verbally and in writing has always been important to me. However, because of a strange disorder named Ehlers-Danlos syndrome my muscle strength has decreased. This means I'm literally tongue-tied when I get tired or too sick. Imagine my frustration not being able to express myself the way I like. In my mind I create beautiful long sentences, but they come out clumsily. My frustration got even worse when I had to seek help from a speech therapist. A lovely and very kind girl, but she made me practise words that reminded me of the times my kids were learning to read and write. Speech therapy is a challenge! Therefore I decided to stop talking for today and start writing. Hopefully this blog will connect people with EDS and other strange disorders that affect your well-being. I will try to post regularly and share my experiences.
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